Men with breast cancer express a desire for more information regarding diagnosis, care and mental health, according to an analysis published in The Breast Journal of internet forum posts.
Cisgender men account for fewer than 1% of all breast cancer cases, and few studies to date have investigated the information needs and preferences of men with the disease. However, prior research has shown that a substantial proportion of men with breast cancer feel that the available information is primarily targeted towards women and is therefore not relevant to them.
The study analyzed 96 online posts by men in German-speaking countries across three forums. The researchers identified seven overarching themes in the data.
The first category pertained to epidemiology and general questions about male breast cancer. Patients had questions regarding the risk of developing breast cancer, prognosis and the implications of being genetically predisposed to the disease.
Read more about helpful links and resources for breast cancer
Individuals had several questions regarding the diagnostic process and initial symptoms, too. Some questioned how to properly palpate the male breast to locate lumps.
Participants also expressed concern over the risks and benefits of different diagnostic procedures, including biopsy and imaging. Contributors discussed what to expect during diagnostic visits with doctors, with some mentioning the complex medical terminology used during appointments.
In terms of therapy, a number of sub-themes emerged, including efficacy, risks and short- and long-term side effects. Discussions spanned from drug-based therapy to surgery to radiotherapy. Participants were also curious about different complementary therapies, such as cannabidiol (CBD) or cold therapy.
In addition, contributors stated they would like more information on which specialist services to contact. Many were unsure of whether men could utilize gynecological services or whether male-specific breast cancer clinics existed.
Rehabilitation and lifestyle adaptation were also heavily discussed. Contributors asked questions about follow-up, fear of recurrence and impacts on private and professional life. Similarly, individuals reported mental health concerns, including anxiety, sleep difficulties and social and financial instability.
The final theme highlighted the need for more current information on breast cancer among men.
“These findings underscore the importance of sex- and gender-sensitive approaches in addressing informational needs in oncology care,” the authors concluded.
Sign up here to get the latest news, perspectives, and information about breast cancer sent directly to your inbox. Registration is free and only takes a minute.